Q&A: what are the stages of pulmonary fibrosis?
Question by : what are the stages of pulmonary fibrosis?
Best answer:
Answer by bubbles
pulmonary fibrosis is the gradual scarring of lung tissue. there are several theories as to what causes the injury from genetic to autoimmune to enviromental factors. Air sacs become slowly replaced by scar tissue eventually affecting air exchange. Research in this area is limited. Pt have different stages of progession of disease
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Is pulmonary fibrosis genetic?
Question by aking5150: Is pulmonary fibrosis genetic?
My mother died from this at 47 years old, I never knew she had it, but this is what is listed on her death cert.
Is this genetic, should I get tested somehow? I am 31.
Best answer:
Answer by Barry M
Sorry to hear about your mother. Little is known about the mechanism of the disease. It does seem to have a genetic component, but researchers are still searching for the gene or genetic sequence that may cause pulmonary fibrosis. Since that component has not been isolated, it would probably be of little value for you to be tested now. It may be a good idea to look at the information available on the following sites periodically – they list all advances in PF research.
http://www.coalitionforpf.org/
http://www.pulmonaryfibrosis.org/
Again, I am sorry about your mother. I know how tough this disease can be – I was diagnosed 5 years ago. My fear is that it is genetic and that my daughters will inherit it. It is my hope that research will someday reveal not only the cause, but yield a cure. I sincerely hope you never, ever have to deal with this disease again.
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Is there a link between the drug macrodantin and Pulmonary Fibrosis?
Question by Margaret B: Is there a link between the drug macrodantin and Pulmonary Fibrosis?
My 80 year old mother was just diagnosed with Pulmonary Fibrosis. We’re learning about it now. She’s had increased shortness of breath over the months and has a dry cough for quite some time. Many years ago (probably 5-8…she can’t remember), she took the drug Macrodantin to help relieve her urinary track infections. I’m just understanding now there could be a link between that and developing pulmonary fibrosis. Can anyone comment and/or offer some insight? Her condition is considered “moderate” by a pulmanologist. She’s about to undergo the “breathing functionality” test, but hasn’t done so as of yet. I would appreciate any feedback. Thanks in advance. Also should she be changing her diet at all (or any tips there?). Thanks.
Best answer:
Answer by VeeBee
Macrodantin
Respiratory:
CHRONIC, SUBACUTE, OR ACUTE PULMONARY HYPERSENSITIVITY REACTIONS MAY OCCUR.
CHRONIC PULMONARY REACTIONS OCCUR GENERALLY IN PATIENTS WHO HAVE RECEIVED CONTINUOUS TREATMENT FOR SIX MONTHS OR LONGER. MALAISE, DYSPNEA ON EXERTION, COUGH, AND ALTERED PULMONARY FUNCTION ARE COMMON MANIFESTATIONS WHICH CAN OCCUR INSIDIOUSLY. RADIOLOGIC AND HISTOLOGIC FINDINGS OF DIFFUSE INTERSTITIAL PNEUMONITIS OR FIBROSIS, OR BOTH, ARE ALSO COMMON MANIFESTATIONS OF THE CHRONIC PULMONARY REACTION. FEVER IS RARELY PROMINENT.
THE SEVERITY OF CHRONIC PULMONARY REACTIONS AND THEIR DEGREE OF RESOLUTION APPEAR TO BE RELATED TO THE DURATION OF THERAPY AFTER THE FIRST CLINICAL SIGNS APPEAR. PULMONARY FUNCTION MAY BE IMPAIRED PERMANENTLY, EVEN AFTER CESSATION OF THERAPY. THE RISK IS GREATER WHEN CHRONIC PULMONARY REACTIONS ARE NOT RECOGNIZED EARLY.
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Solitary Pulmonary Nodule Part 1 * Babury, MD * doctorsforafghanistan.com
doctorsforafghanistan.com Mohammad Akram Babury, MD, FCCP, Associate Director of Pulmonary Medicine, New York.
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anyone out there have any help for diagnosis of pulmonary fibrosis?
Question by : anyone out there have any help for diagnosis of pulmonary fibrosis?
My husband was diagnosed with pulmonary fibrosis about 1 year and a half ago. He began a horrific cough about 5 months ago. The doc says he has never seen anyone who had a cough as the main symptoms with the fibrosis. Anyone else have a terrible cough with the fibrosis. Some have said he has interstatial and some have said he has idiopathic. He has lost his voice – I’m gong to say from the horrific coughing. He has been placed on 80mg of prednisone early on and then on 40 for 2 months. He is now down to 20mg. He is also on chemo therapy in hopes to stop the progression of the fibrosis. I really need some help.
He is on oxygen at night and on bad days. It breaks my heart to listen to him cough himself into breathlessness.
Best answer:
Answer by C B
IP6… Inositol Hexaphosphate , Also called Phytic Acid. It is a dietary supplement that is very very safe and has been found to help in pulmonary fibrosis caused by irritants like asbestos. You should check into it. Also rice bran oil added to the diet. Check out these two products on the net there is a lot of info. Also something called resveratrol. There is only one brand that I know of that is packaged correctly not to lose it’s properties, and that is longevinex, but there may be other brands out now. The resveritrol actually has a medical study behind it: http://linkinghub.elsevier.com/retrieve/pii/S1094553906000848
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Slideshow of 2011 Broadway Event Featuring Liza Minnelli – Pulmonary Fibrosis Foundation
Pictures from the event Songs for Mike.
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Categories: Videos Tags: broadway, fibrosis, minnelli, liza, event, pulmonary, slideshow, 2011, foundation, featuring
PART 3 PULMONARY FIBROSIS.
Here we look into my mental state as the disease affects my day to day life.
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Q&A: Why are emphysema patients more prone to pulmonary infections such as bacterial bronchitis?
Question by : Why are emphysema patients more prone to pulmonary infections such as bacterial bronchitis?
Can I get a 4 line answer for that question? Thanks
Best answer:
Answer by izzy
Because the lungs lose their elasticity the alveoli (little air sacs) are damaged making it difficult to breathe. Lungs become weak, extra secretions, trapped gas in the dmaged alveoli leaves them open o infection.
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Categories: News Tags: bronchitis, prone, infections, patient's, pulmonary, such, bacterial, more, emphysema
I want know more about Pulmonary Fibrosis as I am in the process of being reffered and they believe I have it?
Question by Millar901: I want know more about Pulmonary Fibrosis as I am in the process of being reffered and they believe I have it?
I am a 38 yr old Policeman who for the last couple of years has had low Blood/Oxygen counts of between 85 and 94%. Last year I was diagnosed with Esophageal Spasms and since then have had chest pain which I have managed with a combination of GTN spray and painkillers. Over the past 4 months or so I have been getting more and more short of breath and following initial tests was found to have Pneumonia 2 months ago. Now I am being referred to a lung Specialist on the mainland as my consultant believes I have Pulmonary Fibrosis possibly caused by Sarcoidosis. However tests on the Sarcoidosis found it is currently in the safe range. Having done some research on the net it seems that if its confirmed threesis not much hope which has scared both me and my poor wife. As I say I’m 38 never smoked and generally keep in good health and I wondered if anyone out there could give me any advice and/or hope? At this time I am just waiting to hear from the mainland and even though I’m trying to be optimistic I am getting frightened of what the future might hold for me and my young family.
Best answer:
Answer by ?
By no means am I an expert on sarcoidosis, and my perception of it could be completely wrong. However, I looked it up again and I’m fairly confident that:
“NHLBI, Sarcoidosis: NHLBI (Excerpt)
In general, sarcoidosis appears briefly and heals naturally in 60 to 70 percent of the cases, often without the patient knowing or doing anything about it. From 20 to 30 percent of sarcoidosis patients are left with some permanent lung damage. In 10 to 15 percent of the patients, sarcoidosis can become chronic.
When either the granulomas or fibrosis seriously affect the function of a vital organ–the lungs, heart, nervous system, liver, or kidneys, for example–sarcoidosis can be fatal. This occurs 5 to 10 percent of the time. (Source: excerpt from NHLBI, Sarcoidosis: NHLBI)”
So while sarcoidosis is a nasty autoimmune disease (it killed Bernie Mac), people typically bounce back and heal up again. Keep your head up.
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Utah Gov. Walker pulmonary fibrosis PSA
Former Utah Governor Olene Walker has a special message about pulmonary fibrosis.
Video Rating: 5 / 5
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What causes pulmonary fibrosis?
Question by sjy: What causes pulmonary fibrosis?
Best answer:
Answer by Miguel Sanchez. Go Spain!
DPLD may be classified according to the cause: -
Inhaled substances
Inorganic
Silica
Asbestos
Beryllium
Organic
Hypersensitivity pneumonitis
Drug induced
Antibiotics
Chemotherapeutic drugs
Antiarrhythmic drugs
Connective tissue disease
Systemic sclerosis
Dermatomyositis
Systemic lupus erythematosus
Rheumatoid arthritis
Infection
Atypical pneumonia
Pneumocystis carinii pneumonia
Tuberculosis
Idiopathic
Sarcoidosis
Idiopathic pulmonary fibrosis
Hamman-Rich syndrome
Malignancy
Lymphangitic carcinomatosis
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April 7th update on my mothers pulmonary fibrosis
Ricky Montez speaking on my mothers (Dixie Montez) health and upcoming fund raising event, “Run for a Miracle.”
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anyone know anything about pulmonary fibrosis?
Question by luckylady52443: anyone know anything about pulmonary fibrosis?
Husband has been diagnosed and need some support and feed back from others.
Best answer:
Answer by dragonkisses
http://www.pulmonaryfibrosis.org/ipf.htm
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Team Simmons at the Violet Rippy 5K run/walk for Pulmonary Fibrosis
Idiopathic pulmonary fibrosis is a lethal and so far untreatable disease. On Aug 13, 2011 over 200 people participated in a race organized by Tami Rippy and dedicated to the efforts of the Coalition for pulmonary Fibrosis to improve awareness and research funding. Members of the Dorothy P. and Richard P. Simmons Center for ILD participated in the event
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Q&A: If you have pulmonary fibrosis, do you ever wish you had gotten lung cancer instead?
Question by A nobody from Oklahoma: If you have pulmonary fibrosis, do you ever wish you had gotten lung cancer instead?
My 70 year old dad was diagnosed 2 years ago (approximately) with PF, and had been doing fairly well until winter. He is starting on a regimen of 17-18 natural supplements, as well as a juice that is geared towards cancer patients but is supposed to strengthen the immune system. He was a 40+ year smoker, finally quit for good about 7 years ago. I can’t help but wonder if lung cancer would have been easier to cope with.
(My sister is an RN, and operates a natural foods store, hence the naturopathy)
Best answer:
Answer by Rena D
Please change your name,( I have read your question and I know nothing ) as I started to say, change your name to A really nice person from Oklahoma. That would say who you are better. Best of luck with trying to help your dad..
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info on pulmonary fibrosis?
Question by Christy: info on pulmonary fibrosis?
my grandfather was diagnosed with pulmonary fibrosis in 2003. at first he was misdiagnosed. he is now at the point where he has to have someone stay with him 24/7. he can’t even get up to go to the bathroom without having problems. he is on the highest level of oxygen possible. he can’t even talk for 10 mins without becoming very short of breath. i am really worried about him b/cs he has lost that special twinkle in his eye. the doctors had to put a heart stint in due to this disease. they also told him that if gets one cold it will kill him. so since it is cold and flu season we are having a hard time being able to see him. how do you know when it is close to the end? is my grandpa about to die? i knew from the beginning that this would kill him, but is it about to come? i know people have gone through this… i was wondering how their loved ones acted before they passed. does it sound like the end? i really need some support so i can help him more. thank you for your help.
Best answer:
Answer by Fred F
Christy –
I can feel the hurt in your post. Give yourself a hug. This may seem like a non-answer, but trust me …
Please, call your local Hospice organization as soon as you can. They are specialists in these problems and can offer you tons of support and assistance. They can answer every question you have here, at least those that really have an answer. They can help get everything “organized” so when things get very near the end there need be no feeling of “Oh no, what am I supposed to do?” Most of all they can give you real people to talk to and lean on through this.
Remember, God will never give you a larger burden than the two of you can bear.
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Q&A: Do I have pulmonary fibrosis?
Question by Arthur C: Do I have pulmonary fibrosis?
First off, I am on accutane for my acne, have been for 4 months. I smoked marijuana about 2 1/2 months ago for the first time, I had about 3 bong hits and being asthmatic, I know how to inhale and hold so I breathed in a big lung-full in all three hits. On the third hit I believe I breathed in ash. I felt a really bad burning sensation in my lungs followed by crazy persistent coughing for a few minutes. The next day I woke up my lungs felt really dry internally, and a bit tight, this feeling has persisted until now and my doctor and another doctor I saw, did general check ups on my lungs and said my lungs seem fine. I didn’t have any x-ray or CT scans. They ruled out pulmonary embolism and my own doctor said it might be anxiety caused by my accutane.
Sometimes it gets worse and I have to work really hard to take a breath. At other times it seems better but I still feel that it’s dry and a bit tight.
Is it possible that I have pulmonary fibrosis after just one try of marijuana? I heard you need prolonged exposure to substances to get it but I am worried.
Best answer:
Answer by Alabama
no.
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Q&A: I am not disabled due to Pulmonary Fibrosis and had long term disability with Standard Insurance?
Question by shanaleighbeach: I am not disabled due to Pulmonary Fibrosis and had long term disability with Standard Insurance?
out of Portland Oregon.. They stopped my long term disability in March of 2004 and have not paid another penny to me even though I have stayed in constant contact with them….Anyone out there had trouble with them or another long term disability insurance company and what did you do about it. Thanks
Best answer:
Answer by Patti W
Did they give you an explanation as to why they terminated the long term disability? I don’t understand how they can stop it for no reason. I treat patients in home health care with pulmonary fibrosis and some days it is more work for them to take a breath that anything…I would question their reasons, stay in contact with them and appeal their decision.
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Pulmonary Fibrosis at “Foro Cultural Lipotimia” in Orizaba (Mexico) part 1
PxFx at “Foro Cultural Lipotimia” in Orizaba (Mexico) , filmed by Sebos on the Mexican Lung Diseases Tour in Feruary 2011 .
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Krysten Knievel speaks on behalf of Pulmonary Fibrosis Foundation in honor of her grandfather, Evel Knievel who lost his life to this deadly disease.
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How can we make more people aware of a rare, orphan disease such as Pulmonary Arterial Hypertension?
Question by Nicknet: How can we make more people aware of a rare, orphan disease such as Pulmonary Arterial Hypertension?
Pulmonary hypertension is a rare blood vessel disorder of the lung in which the pressure in the pulmonary artery (the blood vessel that leads from the heart to the lungs) rises above normal levels and may become life threatening. Symptoms of pulmonary hypertension include shortness of breath with minimal exertion, fatigue, chest pain, dizzy spells and fainting.
Go to my page- http://www.firstgiving.com/NickPai or my wife’s story at- http://www.phassociation.org/Our_Journeys/
What do you know about It?
Best answer:
Answer by Melonlady1724
I think the best way to make more people aware of Pulmonary Arterial Hypertension is by educating others, speaking with our doctors, attending seminars, alerting the media, etc. PAH is a serious disease that often gets overlooked and misdiagnosed since it mimics many other illnesses. So more awareness is definitely needed!
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